Thursday, 14 October 2010

Chemo Update

As you know, I was supposed to have my next cycle of chemo a week ago, but due to side effects, they decided to withhold for an extra week.
I was supposed to restart today.  When chemo nurse phoned this morning, although bowels have slowly improved, lethargy is much the same.  She knew I didn't sound keen on having chemo, and I have some questions for consultant so when she hung up , she spoke to one of the docs.  She phoned me back to say the doc didn't want to give me any more chemo until I am seen at clinic (which is 2 weeks time), due to side effects and my feelings.

I am not sure how I feel about this.  I must admit I think I felt relief when she said they were not going to give it today.
My questions for consultant are - is a 2 week on , 2 week off regime possible and has this been done before.  And, I am seriously thinking about coming off chemo altogether just now, and wait for regrowth, as I do feel so ghastly.  Everyone says how well I look, BUT I DON'T FEEL IT.    Should I wait until after my next scan in December??  I feel this chemo is coming to the end of its lifespan anyway, as I don't think there are many others around it has worked this long for.
I guess I am just going to have to discuss all with chemo.  I have tried to get them to make sure I see consultant in 2 weeks time rather than a registrar.
Mmmmmmmmmmmmmmmmmmmmm

On hindsight, I suppose this is the first time I have actually had to make a decision.  All the previous chemo and treatments have been needed to gain control, but now we have control, do I continue or dont I?  Will my quality of life be much better off of it?  Will I regret coming off it when things start to grow again?   Some of these questions are a kind of try it and see situation.  I know my body is screaming to come off it - that I do know - that happened even before my hols when I asked for a break.  Decisions , decisions

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