Well
Just thought it was about time I updated a bit.
Really have not felt the best, continuous gradual deterioration in physical health, feeling sick, very little appetite, bowels, weakness, lethargy, bit of weight loss.
Saw oncs on Tuesday. They did not seem that unduly concerned, but have said they wanted to do CT scan. She said i 'looked well', which to be honest, when I am saying to folks I am feeling really shitty, they are all saying but you look well. Just want to scream out "but I did not look unwell when mets where first diagnosed".
Yes I am worried the cancer has started growing again, and even spread, so any bad news will not be unexpected , I may be wrong, but I really do feel worse by the day!!
Waiting for a day for CT scan, and have gastroenterology next week for bowels - nae looking forward to that one.
I have not told many folks how bad I am feeling, just putting on a face. Mentally, whatever is coming, I am ready for it, it its bad news I will not be shocked.
On the plus side, enjoying doing stuff for school reunioin, its coming along nicely. The old school folks have been very generous with their donations, so raising even more money for Aberdeen Breast Cancer Research Study.
update again soon
xxxx
Thursday, 29 September 2011
Sunday, 18 September 2011
Me again
Well who else would it be????
Have been feeling a bit shit physically. Tired and just generally yeuch, little appetite! This however is not teamed up with weight loss!! After speaking to Clare, I looked more into side effects of lanzoprazole , and a lot of what I suffer is listed in rare side effects. I have prob been on this drug for few years to protect my gut through chemo and drugs, but stopped it due to major bowel issues. Since stopping it, bowels have been better, BUT bloody hell , have suffered from severe heartburn , what is one to do??? Will have to speak to gp or wait till GE appointment beginning of next week..... Life with this disease is not easy :(
Anyway, enough about that, the school reunion plans are going really well. We have around 60 confirmed, with very generous donations to Aberdeen Breast Cancer Unit. I am making up a PowerPoint presentation of school photos , and so far have about 50!!! Really looking forward to that!!! It's shaping up to be a good night..... More from that later.
Have compassion group tomoz and reflexology at CLAN tomoz so that should be good.
Didn't go to pub last night as just felt yeuch :(
Laters
F
Xxxx
Have been feeling a bit shit physically. Tired and just generally yeuch, little appetite! This however is not teamed up with weight loss!! After speaking to Clare, I looked more into side effects of lanzoprazole , and a lot of what I suffer is listed in rare side effects. I have prob been on this drug for few years to protect my gut through chemo and drugs, but stopped it due to major bowel issues. Since stopping it, bowels have been better, BUT bloody hell , have suffered from severe heartburn , what is one to do??? Will have to speak to gp or wait till GE appointment beginning of next week..... Life with this disease is not easy :(
Anyway, enough about that, the school reunion plans are going really well. We have around 60 confirmed, with very generous donations to Aberdeen Breast Cancer Unit. I am making up a PowerPoint presentation of school photos , and so far have about 50!!! Really looking forward to that!!! It's shaping up to be a good night..... More from that later.
Have compassion group tomoz and reflexology at CLAN tomoz so that should be good.
Didn't go to pub last night as just felt yeuch :(
Laters
F
Xxxx
Tuesday, 13 September 2011
Back home
Well, late last night I got back from my weekend in Reading to see Clare.
Clare is a lovely woman, mets dx as I have, but in my eyes she is worse off than me.
We clicked immediately (well I did), had a meal on Friday night and yapped all night. On Saturday,,we had our spa day at Nirvana Spa. When we arrived , we chilled in our robes by pool. I then had a lovely hot stone massage. After that we had a lovely lunch with a cheeky pims :). We then went to the quiet room which consisted of 35 tiled, moulded, heated stone beds and chilled there for however long, was very relaxing apart from Clares gentle snoring. Lol. We then went into HUGE hydrotherapy pool, which let me tell u, if u stood on bits u shouldnt stand on, water went where water should not!!!!! We then had a flotation treatment, 15 min intro, then 40 mins of floating in pool like dead sea , no energy required, total relaxation, altho felt sick if I closed eyes . Then had a sparkling Rose, part of day, then the lovely Jon picked us up and took me back to hotel, where I got room service and chilled.
On Sunday, I went to Clares, met Jon and Jack properly, and had lovely roast beef dinner, it was fab :) spent rest of evening chilling on own then came home Monday.
So glad I went down to meet Clare, love her to bits, she is very much like me.
Will write more tomoz about school reunion
Love to all
Xxxxx
Clare is a lovely woman, mets dx as I have, but in my eyes she is worse off than me.
We clicked immediately (well I did), had a meal on Friday night and yapped all night. On Saturday,,we had our spa day at Nirvana Spa. When we arrived , we chilled in our robes by pool. I then had a lovely hot stone massage. After that we had a lovely lunch with a cheeky pims :). We then went to the quiet room which consisted of 35 tiled, moulded, heated stone beds and chilled there for however long, was very relaxing apart from Clares gentle snoring. Lol. We then went into HUGE hydrotherapy pool, which let me tell u, if u stood on bits u shouldnt stand on, water went where water should not!!!!! We then had a flotation treatment, 15 min intro, then 40 mins of floating in pool like dead sea , no energy required, total relaxation, altho felt sick if I closed eyes . Then had a sparkling Rose, part of day, then the lovely Jon picked us up and took me back to hotel, where I got room service and chilled.
On Sunday, I went to Clares, met Jon and Jack properly, and had lovely roast beef dinner, it was fab :) spent rest of evening chilling on own then came home Monday.
So glad I went down to meet Clare, love her to bits, she is very much like me.
Will write more tomoz about school reunion
Love to all
Xxxxx
Friday, 9 September 2011
It's been a while
Thought it was about time I updated this, and what better time when on a train journey. Have already watched 3 movies and won't have time for another, so here I am.
So where am I off to now? On train to Kings Cross then to Reading to meet a very special 'friend' called Clare. We have talked and got on so well for so long so I have bitten the bullet and going down to meet her in person for the weekend. We are Having a bar meal tonight to get to know each other then tomoz we are having a spa day at a posh spa called nirvana, it looks bliss. I am having a hot stone massage then we are both having a flotation treatment, lunch is included. At night I will just go to my hotel and chill out. On Sunday, I am going to Clares to have a lovely roast (at least I hope it will be lovely lol). Then it will be home Monday :(
Health wise I have had a few niggles lately. Tiredness, increasingly breathless with some chest pain when walking even on the flat, and bowel issues for which i have been referred to Gastro - nae looking forward to that one!!!!!
I got a stay in a hotel donated for my fundraising, and managed to sell 2 raffle books for it, so raised another £200 for Aberdeen Breast Cancer Reserch, well happy.
I was being a wee bit hermit like for the past few weeks, not wanting to go out etc, just like end of last year but trying to push through it!!
I met up with 2 school friends, who I have not seen since last reunion about 13 years ago, and from meeting them 4 days ago, we have organised another school reunion. Looks like we have a lot of interest, it will be much bigger than our last 'very mini' one a few months ago. We are going to sell tickets and proceeds will go to Aberdeen Breast Cancer Research.
Suzie doing fine, now in second year of college, and now has dads car as he has stopped driving, think he has just had enough.
Have oncology end of this month so gonna push for CT scan to put my mind at rest, think a year between scans is enough!!!!
Will try to post more often.........away to drink my free wine lol
Love to all xxx
So where am I off to now? On train to Kings Cross then to Reading to meet a very special 'friend' called Clare. We have talked and got on so well for so long so I have bitten the bullet and going down to meet her in person for the weekend. We are Having a bar meal tonight to get to know each other then tomoz we are having a spa day at a posh spa called nirvana, it looks bliss. I am having a hot stone massage then we are both having a flotation treatment, lunch is included. At night I will just go to my hotel and chill out. On Sunday, I am going to Clares to have a lovely roast (at least I hope it will be lovely lol). Then it will be home Monday :(
Health wise I have had a few niggles lately. Tiredness, increasingly breathless with some chest pain when walking even on the flat, and bowel issues for which i have been referred to Gastro - nae looking forward to that one!!!!!
I got a stay in a hotel donated for my fundraising, and managed to sell 2 raffle books for it, so raised another £200 for Aberdeen Breast Cancer Reserch, well happy.
I was being a wee bit hermit like for the past few weeks, not wanting to go out etc, just like end of last year but trying to push through it!!
I met up with 2 school friends, who I have not seen since last reunion about 13 years ago, and from meeting them 4 days ago, we have organised another school reunion. Looks like we have a lot of interest, it will be much bigger than our last 'very mini' one a few months ago. We are going to sell tickets and proceeds will go to Aberdeen Breast Cancer Research.
Suzie doing fine, now in second year of college, and now has dads car as he has stopped driving, think he has just had enough.
Have oncology end of this month so gonna push for CT scan to put my mind at rest, think a year between scans is enough!!!!
Will try to post more often.........away to drink my free wine lol
Love to all xxx
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