Tuesday, 16 November 2010

Update following onc appointment

Went today to see oncologist for scan results.  Mixed news really.  All the old mets are still stable and unchanged, BUT there is a met on left lung, which at last scan in May was 3mm (and they were not concerned about it then), but has now grown to 8mm.  They are not going to treat with chemo just now, as my body probably wouldn't take it.  Now that we know it is not cancer that is knocking me sideways, we are now going down the cardiac route.
I already have mild heart failure, caused by the 1st chemo, but I do wonder if this has got worse.  I have definitely become more breathless, get cold clammy sweats on exertion (housework etc), and of course the fatigue.  GP yesterday also thought she could hear a heart murmur, so hope nothing is wrong with any of the valves.  I already have an ECHO booked for the end of this month, but wasn't supposed to be seeing the cardiologist, but the oncs are going to write to him so hopefully will see him when I get scan.  My GP has also started me on a diuretic to see if this makes any difference to me.
So basically, at the moment, we have to try to improve the quality of my life, as being able to do not a lot is not much quality is it?
I am fine about decision to stay off chemo just now, as I know body wouldn't take it, so just have to hope we get to the bottom of the exhaustion.
I am going to Norwich to see G and D from Friday till Monday.  Dreading the trip on the train, but hopefully just sitting on my ass I will be ok, and it will be lovely to see them and  get away from home - hopefully it will do me world of good to get away.

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